The Outcome: Participant-Centric Data for Meaningful Change
More than 80 participants joined the study to share their insights with the researchers. Thanks to patient responses collected from this successful study, both Medtronic and healthcare stakeholders better understand the quality of life differences for people using insulin pumps and insulin injections. The President of the Latvian Diabetes Federation, Dr. Indra Stelmane, said it best, "Longenesis's patient engagement and data curation solutions gave us the necessary access not only to diabetic patients but also to research partners that might benefit their needs. We hope that the ongoing project is just the start." Building a Foundation for Patient-Centric Diabetes Care
As Medtronic noted, these results have formed the foundation of a stronger and more patient-oriented diabetes care programme. In a follow-up survey conducted at the close of the initial study, participants shared that they valued the level of personalisation in the research and the ways the Engage platform protected their data. This personalisation is currently not prioritised in diabetes treatment. We hope these research findings will help change the narrative on how doctors select specific therapies for patients and how insurance companies evaluate reimbursement options. As diabetes diagnoses swell in the coming years, we know that supporting future research in this area will help contribute to more personalised treatment trajectories for the hundreds of millions of individuals with diabetes worldwide. We strive for a world where treatment and reimbursement are based on the individual, not one-size-fits-all guidelines. Prioritising Privacy in Research Studies
Finally, Longenesis' products made this research programme more streamlined and privacy-oriented. A leading epidemiologist at the University of Latvia noted, "Digital tools that allow researchers to invite a cohort of people who meet the criteria for inclusion in a study is a new and advanced method of engaging research participants." Similarly, a Medtronic representative shared, "The digital approach and tools used by Longenesis for this project have greatly impacted the speed of patient enrolment, are easy to use by participants and researchers and comply with the highest standards of safety, data protection and are participant-centric." The results of this study are currently in the pre-print phase, and we look forward to sharing the final findings. We invite you to learn more about the potential of Longenesis Engage and Longenesis Curator for your research study by exploring our website.