Result: Global Knowledge Base on Rare Skin Diseases & Improved Diagnosis Rates
Our tools make it easier for doctors to understand rare skin diseases and better diagnose their patients. Not only that, but our borderless metadata platform protects privacy while also empowering affected patients to join studies on their condition. For patients seeking answers about their condition, this makes a world of difference.
Ilze Ļihačova, a leading researcher at the Biophotonics Laboratory at the Institute of Atomic Physics and Spectroscopy at the University of Latvia and a partner in this project, said, "Longenesis' digital tools make it easy to gather patient information, as well as introduce patients to the study and allow them to give their consent to the study in digital form. Digital tools not only enable the remote collection of patient insights but also save resources. We can also collect, analyse and sort data as needed - for example, by specific signs of the disease, age, gender, skin type and more."
Additional quote/testimonial from patient
At Longenesis, our mission is to unlock a healthier future for humans. We build software that makes it easier for medical data to be collected, analysed and utilised for better care. We are excited to see that our digitised patient databases are helping doctors to learn more about rare diseases, connect with other physicians in the field and easily reach patients for participation in groundbreaking research studies.
We look forward to being part of a future where rare skin disease patients have access to rapid diagnosis, treatments and results. This study is ongoing and is expected to conclude by year 2023. To learn more about Curator and Engage and their applications for your area of medicine/research, please contact us.